The Infinite Mind: Multiple Sclerosis

"The difference between those who get well and those that don’t comes down to those that take this disease as a catastrophe rather than an opportunity do not get well."

Emily Mann

In this hour, we explore the chronic neurological disease Multiple Sclerosis. Guests include Dr. Randall Schapiro, founder and director of the Fairview Multiple Sclerosis Center and Minneapolis Clinic Multiple Sclerosis Program; Dr. Patricia O'Looney, director of biomedical research programs at the National Multiple Sclerosis Society; Barbara Paley-Israel, a writer who was diagnosed with MS in 1986 and has become an advocate for people with the disease; social worker Deborah Miller, Director of Comprehensive Care at the Mellen Center for MS Treatment and Research, part of The Cleveland Clinic; TONY award-winning director and playwright Emily Mann; and special commentator Zoe Koplowitz, author of Winning Spirit: Life Lessons Learned in Last Place.

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Great program, listen to it more than once.
This is from the weekly radio program, The Infinite Mind, find it on your local public radio station.

April 21, 2005 in diagnosis, entertainment, general, people | Permalink | Comments (0)

What to Tell the Boss After a Diagnosis

Kenneth Bandler has multiple sclerosis, a degenerative disease of the central nervous system. For over a decade, he kept it a secret.

Whisper here.

April 4, 2005 in diagnosis, people, stuff we don't like to talk about | Permalink | Comments (0)

Hopes of simple blood test for MS

It may be possible to develop a simple blood test to diagnose multiple sclerosis, scientists believe.

MS is currently diagnosed through a combination of scans, tests and physical examination, and can be difficult to spot.

But researchers found people with relapsing-remitting MS have a distinct pattern of proteins in their blood.

More here.

March 16, 2005 in diagnosis | Permalink | Comments (0)

Converging on MS

A group of local doctors is forming an innovative treatment-and-research hub for multiple sclerosis, a mysterious, debilitating disease that, on a per capita basis, afflicts more people in Washington than in any other state.

The newly formed not-for-profit MS Hub plans to serve MS patients in a five-state region that includes Washington, Idaho, Montana, Alaska and Hawaii.
If it opens as planned in July, in a 40,000-square-foot clinic in Seattle's Metropolitan Park office complex near South Lake Union, it will be the largest such MS center in the world, said founding neurologist Craig Smith.

More here.

Craig runs a small clinic in Anchorage, no wonder it's been hard to get an appointment with him.

More info on MS and the Pacific Northwest:
Northwest research centers among leaders in unraveling mystery of MS
VA funds Northwest center to battle MS

"This is a great opportunity to improve care for 50,000 veterans in the U.S. who have multiple sclerosis," said Dr. Dennis Bourdette, co-director for the new MS Center of Excellence West. Bourdette also is a staff neurologist at the Portland VAMC, interim chair of the Department of Neurology at Oregon Health & Science University and co-director of the MS Center of Oregon.

March 4, 2004 in alaska, diagnosis, economy, follow the money..., treatment | Permalink | Comments (0)