Ohio woman with MS dies from sunbathing

A woman with multiple sclerosis who sunbathed several hours in 95-degree heat at her nursing home in northwestern Ohio apparently died of a fever, which measured 109 degrees, the coroner's office said Monday.

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June 29, 2005 in bummer | Permalink | Comments (0)

PERSONAL PERSPECTIVE / It's a family decision

"ONLY YOU can know," my grandmother said.

After a two-year bout with multiple sclerosis, my father had rapidly deteriorated and was connected to one machine that breathed for him and another that digested for him.

For nearly a year, I sat in his room every day listening to the artificial breaths, staring at the slow drips in his IV, following the thick, milky-colored liquid traveling slowly along his feeding tube.

"Is this what he would have wanted?" I would ask my grandparents.

"Only you can know," they would say.

More here.

Link to the Alaska Advance Health Care Directive form.

April 4, 2005 in bummer, caregivers, family, people, stuff we don't like to talk about | Permalink | Comments (1)

Second death may doom multiple sclerosis drug

Cambridge life-sciences company Biogen Idec Inc. last night was plunged deeper into crisis by news that yet another patient taking its troubled Tysabri drug had died of the rare condition PML.     


That's the third patient discovered to have developed PML, a neurological disorder, while taking Tysabri and the second to die from the disease. ``This is a worst-case scenario,'' Sanford C. Bernstein analyst Geoffrey Porges said last night. ``There is now a 1-in-10 chance that this drug ever comes back.''

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March 31, 2005 in antegren , avonex, bummer, tysabri | Permalink | Comments (0)

Biogen, Elan Voluntarily Withdraw MS Drug

More info here.

February 28, 2005 in antegren , avonex, bummer, economy, follow the money..., tysabri | Permalink | Comments (0)

Biogen, Elan Suspend Tysabri After Death

Biogen Idec and Elan Corporation Plc on Monday suspended sales of their much-heralded new multiple sclerosis drug Tysabri after a patient died from a rare but frequently fatal central nervous system disease.

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February 28, 2005 in antegren , bummer, follow the money..., treatment, tysabri | Permalink | Comments (0)

Man planned suicide, friend says

With his legs failing him and the ravages of multiple sclerosis eroding his well-buffed physique, Charles Fariala spent his last few months in solitude, not answering his friend's e-mails even as he was online, meticulously surfing the Internet.

He was searching for a way to die.

Eventually the 36-year-old found the information on one of the Internet's suicide sites. It gave him instructions on how to take his life, which he did Sunday. A close friend said he planned months ahead and wanted to die in the arms of his mother, Marielle Houle.

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September 30, 2004 in bummer, people, stuff we don't like to talk about | Permalink | Comments (0)

Mummified body may have lain in bed for years, police say

Police have found the mummified remains of a Winnipeg man in bed in his condominium, where he may have lain unnoticed for up to two years.

Officers climbed through a window and found Jim Sulkers' body on Wednesday, after relatives from out of town asked the force to check on him, said Const. Shelly Glover.

The medical examiner said Sulkers, a 53-year-old with multiple sclerosis, died of natural causes.

Need a condo with "a good ventilation system" and neighbors that will leave you alone, read more here.

August 26, 2004 in bummer | Permalink | Comments (0)

Brain damage seen in multiple sclerosis patients

Brain scans suggest that nerve fiber damage may be the cause of the fatigue suffered by patients with multiple sclerosis.

Nearly nine out of ten patients with multiple sclerosis (MS) report a debilitating level of fatigue, as well as neurological symptoms such as weakness, tremors and slurred speech. Now researchers at the Montreal Neurological Institute think they have a new insight into the origins of this fatigue.

They gave magnetic resonance spectroscopy scans to a group of 60 patients with MS so that the extent of nerve fiber damage within the nervous system could be measured. They divided the patients into low and high fatigue sub-groups depending upon the level of fatigue reported. They found that there was more nerve fiber damage and poorer nerve functioning within the high fatigue group. This is an interesting study that sheds new light on MS and explains, perhaps, why existing therapies to tackle fatigue often don’t work.

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February 19, 2004 in bummer, symptom management, treatment | Permalink | Comments (0)

Montel's Suicide Attempts

Talk show host and motivational speaker Montel Williams says he nearly committed suicide after being diagnosed with multiple sclerosis in 1999. In his new book, "Climbing Higher," Williams says he wanted to die before the disease got worse. He loaded a .357 magnum and sat in his closet, spinning the barrel, hoping it would go off accidentally so his kids could collect on his insurance, according to an excerpt in the New York Post. He says he spent 45 minutes trying to get the gun to go off, to no avail.

More here.

January 3, 2004 in bummer, newly diagnosed, people, stress, stuff we don't like to talk about | Permalink | Comments (2)

Canada warns of liver complications from beta-interferon use for MS

Health Canada is warning health-care professionals of the risks of using beta-interferon therapy for the treatment of multiple sclerosis.

Serious liver injury such as hepatitis has been linked to beta-interferon therapy, including three cases of liver failure that required liver transplantation, the department said in a release. Serious liver injury is considered rare, with cases mostly occurring in the early months of therapy but also in patients on therapy beyond one year, it noted.

The department reminded treating physicians they should perform periodic liver function tests, particularly in the early months of therapy, and patients receiving beta-interferon products should be aware of the signs and symptoms of liver injury.

More here.

December 19, 2003 in avonex, betaseron, bummer, interferon-beta, newly diagnosed | Permalink | Comments (0)