« Teva Reports Q3 Net Income of $157 Million, Up 63% | Main | Be Wary of Multiple Sclerosis "Cures" »

Multiple Sclerosis Sucks

This is the website that I wish I had written, read it here at multiplesclerosissucks.com.

"I think it is important that MS sufferers and their caregivers maintain a sense of humor. I've read that humor can improve health, and I'm pretty sure that it improves the quality of life. Most of the MS literature that I've read has been sensitive, sensible, serious, and scary, and therefore runs the risk of being turgid, tedious, and trite. If you have MS and you're not ready for humor yet - many MS patients will take years to reach that point and some will never get there - then read no further. If you don't have MS and are looking for humor only, I should warn you that MS is a serious subject so if you are squeamish, then likewise, now is a good time to bail out."

"I've received lots of emails telling me second-hand stories about the frustrating empathy, or lack thereof, that MS engenders in people who really should know better. I'm ashamed to say that most of these people lacking in empathy are the male spouses, lovers, or bosses of female MS sufferers. Rather than say "some people are just jerks", which is true but not a productive thing to say, I'd like to propose the MS Perspective Kit for people who lack the ability to see things from the right perspective."

Here's a good place to start.

November 2, 2003 in humor, people | Permalink

Comments

Thanks for your kind words about my website, multiplesclerosissucks.com! I'm truly flattered.

Posted by: Ian Parberry at Nov 22, 2003 5:33:46 PM

This site changed my life - and kept me for over an hour from writing a paper on assisted suicide public policy development. Sweet!

Posted by: Jim Beck at Nov 7, 2003 8:24:54 PM